tag:blogger.com,1999:blog-2286997110417807189.comments2022-10-29T02:37:39.929-05:00Overcoming Tiny ObstaclesLupita Whttp://www.blogger.com/profile/10388309429257086997noreply@blogger.comBlogger36125tag:blogger.com,1999:blog-2286997110417807189.post-28880727972795120662019-08-08T16:27:35.791-05:002019-08-08T16:27:35.791-05:00So sorry to know the urgent care did not discuss s...So sorry to know the urgent care did not discuss such important details with you. would you mind sharing which antibiotic that was?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-38201906970170992112017-03-25T09:53:48.497-06:002017-03-25T09:53:48.497-06:00Hi! My son is almost 2. He is low tone and has SPD...Hi! My son is almost 2. He is low tone and has SPD. I am SO thankful that I stumbled across your blog! Thank you! Wondering if you ever wrote the post on things you tried and worked for Patrick's SPD??<br /><br />Thanks!<br /><br />LisaLisa K.https://www.blogger.com/profile/03042961508566917338noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-90230214059523213062017-02-16T02:00:22.072-06:002017-02-16T02:00:22.072-06:00During Pregnancy you must have to take every step ...During <a href="http://www.lisapregnancymiraclereview.com/" rel="nofollow">Pregnancy</a> you must have to take every step carefully because you are carrying one more life in your womb as a parent i am so conscious about my children Anonymoushttps://www.blogger.com/profile/10622898127486516103noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-17375695394823468942017-01-24T16:28:35.633-06:002017-01-24T16:28:35.633-06:00Hi. I have two sons with OMA. They have been diag...Hi. I have two sons with OMA. They have been diagnosed with Joubert Syndrome Type 17 through genetic testing. The neurologist initially ruled out Joubert because neither of my sons has the "molar tooth" sign in their MRIs. It turns out that not all Joubert kids exhibit the molar tooth sign. Did you ever get a definitive diagnosis? Just thought you or other OMA parents might benefit from knowing this. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-50339763012093983452016-05-20T10:56:27.779-05:002016-05-20T10:56:27.779-05:00Hi! I have a 14 month old with OMA and a small cer...Hi! I have a 14 month old with OMA and a small cerebellum. I love to read your posts! Have you decided yet what to do about school? Is a combination of homeschooling and public or private kindergarten an option?Anonymoushttps://www.blogger.com/profile/06790681111140965405noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-46356424885568857382016-05-15T08:47:34.225-05:002016-05-15T08:47:34.225-05:00Thank you so much for writing this post (and the w...Thank you so much for writing this post (and the whole blog -- I can't tell you how comforting it is). I have identical twin boys, both of whom have OMA. We noticed it first in Oliver, but after we knew what to look for in Caleb, we realized he also had it (though not nearly as severe and only really noticeable when you are purposely trying to get him to track something). We noticed their developmental delays and got them in therapy before we even knew there was anything different about their eye movement. We just had an MRI for Oliver, and it came back normal! Before that, I was so hesitant to delve into literature or blogs because I didn't know what was wrong, and I QUICKLY fell down the rabbit hole with worry. Now that I know the MRI was normal, reading about your son gives me so much hope. Thank you :)Cecelia W.https://www.blogger.com/profile/02926307986314812761noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-8956471734169630202016-05-15T08:47:08.250-05:002016-05-15T08:47:08.250-05:00Thank you so much for writing this post (and the w...Thank you so much for writing this post (and the whole blog -- I can't tell you how comforting it is). I have identical twin boys, both of whom have OMA. We noticed it first in Oliver, but after we knew what to look for in Caleb, we realized he also had it (though not nearly as severe and only really noticeable when you are purposely trying to get him to track something). We noticed their developmental delays and got them in therapy before we even knew there was anything different about their eye movement. We just had an MRI for Oliver, and it came back normal! Before that, I was so hesitant to delve into literature or blogs because I didn't know what was wrong, and I QUICKLY fell down the rabbit hole with worry. Now that I know the MRI was normal, reading about your son gives me so much hope. Thank you :)Cecelia W.https://www.blogger.com/profile/02926307986314812761noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-88593261376183386992016-01-23T20:26:53.217-06:002016-01-23T20:26:53.217-06:00Hello. My 17 months old daughter was recently diag...Hello. My 17 months old daughter was recently diagnosed with oculomotor apraxia...I'd love more information and suggestions on this matter. Zenobiamcrae@gmail.com Anonymoushttps://www.blogger.com/profile/05835915177164226369noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-25406993511390934922015-08-27T09:16:54.094-05:002015-08-27T09:16:54.094-05:00Patrick is a really lucky child to have parents su...Patrick is a really lucky child to have parents supporting him and encouraging him, especially through prayer!Pomelinehttps://www.blogger.com/profile/10476709616251347294noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-33524053715986393322015-06-17T08:57:41.049-05:002015-06-17T08:57:41.049-05:00Hi,
I have to say I was smiling throughout the w...Hi, <br /><br />I have to say I was smiling throughout the whole article as it felt as I am reading about MY little one. I have 10 months old boy Joe who has been diagnosed with OMA and he also has a gross motor skill delay. Joe is so laid back, content and smiling all the time that it cannot be coincident :-). <br /><br />I love your block and I really have to salute you for doing it for all of us who are searching for bit of information, assurance, understanding and feeling that everything will be allright. <br /><br />Thank you very much for your website and all the best to you and your family. <br /><br />Kristina BlazkovaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-87361392163978295002015-03-12T12:57:09.728-06:002015-03-12T12:57:09.728-06:00Thank you for the kind words! I'm enjoying doi...Thank you for the kind words! I'm enjoying doing this very much, and I'm specially happy with the support from other parents and adults with OMA who have helped me accomplish this goal. We will be working hard to keep up with the website and with new ideas to grow our community closer and stronger. Lupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-67599685071485500602015-03-01T21:15:16.860-06:002015-03-01T21:15:16.860-06:00I appreciate the tremendous amount of work and tim...I appreciate the tremendous amount of work and time you have put into this blog and the new website. You are the voice for those who are still seeking for support/answers. I know it is the beginning, but finally I feel that we, (parents with kids who have OMA/adult with OMA), will built a better understanding of OMA. THANK YOU VERY MUCH!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-86490313108080303182014-09-17T09:53:41.122-05:002014-09-17T09:53:41.122-05:00Hi there! My name is Heather and I was just wonder...Hi there! My name is Heather and I was just wondering if you could answer my quick question about your blog! If you could email me at Lifesabanquet1(at)gmail(dot)com that would be great!Heatherhttps://www.blogger.com/profile/04104895709983001125noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-35632384284558903252014-03-13T09:13:59.285-06:002014-03-13T09:13:59.285-06:00Hi Pinkrattie, I know I said that I would probably...Hi Pinkrattie, I know I said that I would probably write a post about infants with hypotonia because I thought that our new baby Robbie also had hypotonia. He was evaluated by Patrick's PT and she said she didn't believe Robbie had hypotonia, she suggested however, that we placed him often on his belly with a little pillow or a blanket under his chest to force him to lift his head and upper body. He began rolling over, and sitting, and crawling shortly after so I never looked more into hypotonia in infants. I just did a quick search and I found these links that I hope can help you. http://www.amazon.com/Great-cerebral-palsy-other-challenges/lm/R3LN94DVUKIJFH<br />http://www.helpyourbabywalk.com/mainsite/toys-and-products/<br />http://www.cdadc.com/hypotonia-low-muscle-tone/hypotonia-low-muscle-tone-exercises.htmlLupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-39599319453499941242014-03-13T08:56:20.046-06:002014-03-13T08:56:20.046-06:00Hi there! Thank you for writing to me. How's O...Hi there! Thank you for writing to me. How's Olivia doing? I'm curious to hear what the neurologist had to say about her MRI. I would also like to hear more about how is she doing... I'm sure she has progressed quite a bit since you last wrote. The therapies helped Patrick a lot, too. Sometimes I feel like he is sort of "stuck" for weeks, but then other times he has a very quick progress. If you ever feel inclined to share more about Olivia's story on this blog, please do so! Here is a link with more information on how to do that. http://overcomingtinyobstacles.blogspot.com/2014/02/overcoming-your-tiny-obstacles.html<br />Thank you!Lupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-52415072834541547162013-12-15T03:05:57.898-06:002013-12-15T03:05:57.898-06:00Any toy ideas for infants with hypotonia?
Any toy ideas for infants with hypotonia?<br />pinkrattiehttps://www.blogger.com/profile/04919581060023527538noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-39679259481864097742013-10-23T12:29:54.057-05:002013-10-23T12:29:54.057-05:00Hi there, thank you so much for taking the time to...Hi there, thank you so much for taking the time to do this blog. My little girl Olivia has hypotonia and has just been diagnosed with OMA. We have an appointment with the nuerologist next month do discuss the results of her MRI. I have to admit to freaking out a little bit. Not knowing what it all means for her development is worrisome as a parent. We go to physio each week and will start OT soon. Olivia has made so much progress in the last fours months, it's amazing. she's gone from being not able to sit up (but not get herself to sitting and just falling over) at 11 months to now at 16 months where she can cruise and independent standing for short periods of time. her speech is a little slower. she seems to make developmental spurts in one area or another but now she is making lots of different sounds and says mama papa, bath etc. she trys to copy the other children (3 older siblings) do puzzles and put mechano together. it's early days for us, yes, it is more challenging especially meeting the needs of her siblings as well, but I see her develop each week and it gives me hope too. Thank you for your blog. I live in Canada and this is really the only thing I have found online that is making any sense to me. I' posting as anon becuase i don't have google accountAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-58510241399088473372013-09-17T15:36:08.159-05:002013-09-17T15:36:08.159-05:00Hi Dana, thank you for sharing this and reading my...Hi Dana, thank you for sharing this and reading my blog. I know exactly what you mean about all the word approximations being similar... Patrick used to say "ba" for so many things (ball, bath, pacifier...), and also used "ca" and "pu" a lot. Now he is 34 months, and he started improving significantly recently. He is FINALLY using two words (bye mommy, go tide (go outside), baby sit...) and he is more interested in repeating two- or three-word syllables. I'm very excited about the improvements, although the concern is still there as to whether he has or not apraxia or dyspraxia, because his articulation is still poor. He is taking a break from speech therapies, since he just started school and I want to see if that helps him like most people tell me. After seeing the recent improvements, I have to say that it makes more optimistic, and I'm sure your son will follow the same path. Have you read my other posts related to speech delay and the things we did to help him? You can find them here: http://overcomingtinyobstacles.blogspot.com/search/label/speech%20delay<br />I learned very recently about PROMPT speech therapies, I wonder if Patrick would benefit from that. If you do anything specific that helps your child, I would love to know, so please check back and write a note! Good luck with your little one!Lupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-69804407298637490872013-09-17T11:14:00.805-05:002013-09-17T11:14:00.805-05:00Thank you!! When I wrote this, Patrick was my only...Thank you!! When I wrote this, Patrick was my only son, now I have another baby and have confirmed what I wrote! While Robbie is a happy and good little baby, I still think Patrick had some special happiness and laid back personality that was unique.Lupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-60370080547458119082013-09-12T06:32:22.471-05:002013-09-12T06:32:22.471-05:00Lupita thank you for writing this...I too am strug...Lupita thank you for writing this...I too am struggling to find the cause of my son's speech delay. What you wrote is so familiar...slow progress with speech therapy, struggling to find answers. My son is 29 months old and also does not have any two word phrases, no two syllable words, and most of the words he does have are approximations. A lot of those are very similar too ("ca" can mean car, popcorn, cake, pancake, etc.). Dananoreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-24620896555053637702013-09-04T12:46:53.316-05:002013-09-04T12:46:53.316-05:00Gracias Marina! De hecho, solo algunos familiares ...Gracias Marina! De hecho, solo algunos familiares y las changas me llaman Lupis, asi que tenia mis sospechas que era alguno de ustedes jeje. Saludos!!Lupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-57388934070167781212013-09-04T12:44:43.022-05:002013-09-04T12:44:43.022-05:00Thank you very much, Jordan! I appreciate you'...Thank you very much, Jordan! I appreciate you're taking the time to read the blog =)Lupita Whttps://www.blogger.com/profile/10388309429257086997noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-35940281620419612622013-09-04T04:26:47.534-05:002013-09-04T04:26:47.534-05:00soy Marina, no se por que tengo ese nombre de perf...soy Marina, no se por que tengo ese nombre de perfil jajaLu Gonzálezhttps://www.blogger.com/profile/13523736596751592105noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-30167688490079478422013-09-04T04:25:55.736-05:002013-09-04T04:25:55.736-05:00Sigue luchando Lupis, tu, Patrick, Tim y Robbin se...Sigue luchando Lupis, tu, Patrick, Tim y Robbin seran muy bendecidos. xLu Gonzálezhttps://www.blogger.com/profile/13523736596751592105noreply@blogger.comtag:blogger.com,1999:blog-2286997110417807189.post-33267788155094904642013-09-03T15:39:34.653-05:002013-09-03T15:39:34.653-05:00Errrr, your, not you're! Autocorrect! =)Errrr, your, not you're! Autocorrect! =)Jordan M.noreply@blogger.com