Growing up with Oculomotor Apraxia, speech delay, hypotonia and sensory processing disorder.
Tuesday, March 19, 2013
Overcoming Low Muscle Tone: Toys
This post is second in the series Overcoming Low Muscle Tone. To read the previous post in the series, "Activities", please click here.
a) Shopping cart
We got this shopping cart for Patrick, although I found it at a goodwill for $7. I have to say, he was interested in using it only until he had learned to stand with support and he had started to give a couple side steps with support of the furniture. This toy is great because it motivated him to move (we used it outside -he loves outdoors) and you can add weight to it to fit your kid's needs, like putting toys or things he wants to move around.
A cheaper alternative? You can use a lightweight stroller if you have one. Also, the Trader Joe's store by our house has little shopping carts, and I heard some Giant stores do too (not the one by us though). Check at the stores near you if they have any and let your little one help you with some shopping.
b) Ride-on toys
Ride-on toys are GREAT for toddlers with low muscle tone. If they want to go anywhere, they will have to use their legs. A friend of us gave Patrick this one, which was great because he liked the noises every time he bounced, so he was constantly bouncing, making his legs stronger. Also, there are other ride-on toys that have a little storage area, and you could place cans or something heavy inside to make your child work harder to move, once he has mastered the use of it.
Patrick has now a lil quad, but I would not recommend this for your low muscle tone child, until he has gotten strong enough to walk and move around on ride-on toys. You can read this post I wrote to learn why.
c) Trampoline
I bought this trampoline for Patrick and despite the not so good reviews, he likes it. It is a bit expensive though, but he has had it for almost a year and still looks like new. He used to get on it everyday, but not much anymore. At first, when he couldn't stand on his own, he liked climbing on it and getting out of there (it has padding so it is safe) so even then it was entertaining and helpful for his low muscle tone. Then eventually he learned to jump on it and he enjoys it and I'm sure little Robbie will get some use out of it as well.
d) Gym ball.
Children with hypotonia lack strength and balance. A gym ball will help with both. There are exercises you can have your child do on a gym ball, here are two ideas:
1.- Place your child upside down on top of the gym ball. Slowly, move the ball forward, and help your kid to not fall by placing his/her hands on the ground. This activity will help mostly with the upper side of his/her body.
2.- Place your child sitting on the ball. Slowly move the ball to all sides. Your child will try to stay on top without falling, therefore making him learn to get more balance and more strength.
An alternative? Your back or your partner's back. Place your child sitting on your back while you bend on knees and hands on the floor, then move around while he rides on. The more you move your back, the more balance he will need, and it is fun, too! It helps if you have your partner or someone with you to help hold your child while you move to prevent falling, or at least try to do this activity on a padding surface and be ready to catch your child in case he looses balance.
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These toys are helpful for hypotonia kids that already stand with support. We addressed Patrick's hypotonia until he was 1 year old, so I don't have much insight for infants. However, I may write about hypotonia in infants in the upcoming months, as it looks like our baby Robert also has hypotonia.
Saturday, March 9, 2013
Overcoming Low Muscle Tone: Activities
Many people are drawn to my blog searching for information on Hypotonia. I have been writing a series of posts about the things that helped Patrick in this regard, which I will be posting throughout March. We have been working on his hypotonia for a little over a year... He went from not rolling over, not crawling and not standing even with support at one year of age, to completely running by age 2. It isn't a quick process. He has come a long way, but there is still much to do, like making his legs stronger so that he doesn't fall too often when running or walking on uneven surfaces.
From activities, to specific toys and clothing, there were a number of things that helped Patrick improve his low muscle tone significantly. There is a lot of information out there about what is hypotonia (here is a great compilation) so I will just focus on the specific things that helped my son.
To begin the series, below are some activities:
a) Climbing stairs

Take him to playgrounds and make him try to go up and down the steps to get to the slide.
Patrick wasn't interested at first, it took a little while for him to be interested on going up the stairs, so don't get desperate. Just keep trying!
b) Soft playroom

If your ReCenter doesn't have a soft playroom, check out your nearest mall. Some malls have children areas, and usually everything in it is soft and safe -perfect for hypotonia kids! The best part is that these areas are free of charge. In the video below, Patrick (at around 18 months old) is playing at one of these areas at the mall. By then he had learned to crawl up the slide, but scooting on his buttocks was still his favorite and easiest way to move from one place to another (he couldn't crawl or walk). You may also be able to see his ankle/foot orthotics which he is wearing to help with his pronation.
You can buy the soft play shapes online in sites like this one, but as you can see, these things are pretty pricey. An alternative? Pillows at home. You can recreate your own soft playroom at home by placing pillows and blankets on the floor. Make your child work his way through a pillow if he wants to reach a toy, or reach you. Place soft obstacles in between baby and you, and he will be crawling/climbing in no time!
c) Parks!
Why are parks, water parks and overall outdoor activities so important? Please read this post I wrote not too long ago.
You may have to re-arrange your furniture in a way that your child can cruise around. Place sturdy furniture close to another piece of sturdy furniture so that your child can cruise from one to another, like moving from a couch to the coffee table, or from the couch to a chair. You can also try placing him standing on one end of the couch, and put toys on the other end and encourage him to reach it. With Patrick, it helped to put the laptop on the other end... he wouldn't move to reach the toys, but he did move to reach my laptop!
This post, "activities", is just Part 1 on the series, stay tuned for the following posts!
Thursday, February 28, 2013
Developmental Evaluation Results
The title of this blog, Overcoming Tiny Obstacles, couldn't have been more accurate to what we are experiencing... as the times goes by, I get more convinced about it. It's one obstacle after another. Tiny obstacles, but obstacles at last. Trying to overcome each one as they present, and praying and hoping that they don't get bigger, or more difficult, and that once and for all, they all disappear. But that's not happening... not just yet.
Just when we got all excited about the huge improvement of Patrick's low muscle tone, we discovered that his ability to talk was affected too. We thought that by being able to explore (by running, climbing...) the same way as his friends, he would reach the same developmental stage as them. But then speech delay came along and we realized how important was language in the learning process. How can he understand abstract concepts, like counting or feelings, when he can't even name the very basic ones?
Just when we got all excited about the huge improvement of Patrick's low muscle tone, we discovered that his ability to talk was affected too. We thought that by being able to explore (by running, climbing...) the same way as his friends, he would reach the same developmental stage as them. But then speech delay came along and we realized how important was language in the learning process. How can he understand abstract concepts, like counting or feelings, when he can't even name the very basic ones?
Tuesday, February 12, 2013
Friendship helps overcome obstacles
So much is going on with Patrick right now that I have tons of posts to write... I just can't seem to find the time to do it! He recently had his 1 year evaluation with the Early Intervention Services from the Infant and Toddler Connection. He also had his 6 month evaluation with the Developmental Pediatrics at the Children's Hospital. Some were good news and some... not so much. Patrick has also increased his Speech therapies to 3 times a month (things aren't going so well in that regard) and he still has his physical therapies once a month, so he is now receiving weekly services.
I hope my husband finds some free time to help me with the kiddos so that I can write all about that. In the meantime, I want to talk about how friendship has been a life saver to our family. Since I became a stay-at-home mom, I wanted to be able to hang out with other stay-at-home moms, and I was so lucky to find a group of moms that met less than 2 miles from my house! I want to dedicate this post to give a shout out to the wonderful moms group at St. Louis Catholic Church. Being part of this group is great in so many ways. Here are a few reasons:
Tuesday, January 29, 2013
My Christmas miracle! (December 2012 Recap)
Happy New Year! (It's still January, so it still counts, right?)
A number of things happened this past December but right now I just want to talk about the most important one: Our baby Robert Louis was born.
On the 23rd, my sister and nephew came from Mexico to spend the holidays with us, and as we went to pick her up from the airport, I posted on my facebook page "On our way to the airport to pick up my sis and nephew!! BTW, no baby yet, due date is tomorrow but doesn't look like is going to happen soon..."
Doesn't look like is going to happen soon?
A number of things happened this past December but right now I just want to talk about the most important one: Our baby Robert Louis was born.
On the 23rd, my sister and nephew came from Mexico to spend the holidays with us, and as we went to pick her up from the airport, I posted on my facebook page "On our way to the airport to pick up my sis and nephew!! BTW, no baby yet, due date is tomorrow but doesn't look like is going to happen soon..."
Doesn't look like is going to happen soon?
Friday, December 14, 2012
Patrick's little brother will be here anytime!
My pregnancy with Patrick was overall good, and as lucky as I could consider myself with that pregnancy, this one has been even better! Both pregnancies have been different from each other, not crazy different, but definitely not the same. I think this baby moves more than Patrick ever did (which isn't so great when you are trying to sleep) but he doesn't get hiccups as Patrick did. With Patrick I had nausea 2+ months, but with this baby I only had nausea 3 days, literally. I feel like baby was telling me "hey, I'm here, you are pregnant!" because once I took the pregnancy test at the third day, the nausea disappeared.
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