Wednesday, August 28, 2013

About this blog and the blogger

Blogger's Background
I'm not a doctor, or a therapist, nor an expert on any of the medical issues I talk about here. I'm, however, the mother of a child who has all the medical issues that I write about.

Blog's Sources:
Most of the things I talk about have no source cited. The reason is simply: I didn't read X or Y somewhere specifically. I got to X or Y conclusion by reading many things, in many places, talking to Patrick's doctors, working with Patrick's therapists. Helping Patrick myself. A statement on any given post was most likely the conclusion I drew from all these things combined.

Advises:
I advice you to try anything that is safe if you think it would help your child. The point is to try different things and to not give up. This whole blog is based on the experiences we are living by having a child with OMA and developmental delays. We have tried, failed and succeeded at one thing or another, and I'm passing on to you those very own experiences.

Advertising:
When I talk about products, I often link the products to Amazon.com. The reason is because Amazon sells about anything we can think of, and has reviews from buyers, and usually has lower prices. Being that said, I rarely buy a toy from Amazon. But I can't link the toys to Goodwill, consignment sales, or craigslist, where I buy most of the toys my children have (talk about recycling and saving money!). So if I suggest to purchase a toy or a book, or any product or service, please know that I'm not being remunerated by the company or the seller to promote its product.

About the posts:
All the posts I have written can easily be searched by date and topic. On the top of the left hand side you can find the archives categorized by month. If you are looking for a topic in particular, let's say, hypotonia, you can click on the word "Hypotonia" under Labels. That will take you to all my posts where I talk about hypotonia.

Most of the posts are single posts, but I also have "series" (Overcoming Low Muscle Tone and Overcoming Behavior Issues, as of today) where I write a number of posts on a specific topic. For example, the Overcoming Low Muscle Tone series consisted of 7 posts with advises on how to help your hypotonic child. However, I make mention of hypotonia in other posts that are not part of the series (as of today there are 16 posts total on hypotonia, including the posts in the series.)

There are MANY things I leave out on the posts. I realize that if I got into too many details I would end up writing a book. So I try to keep it short (sort of) which takes me to my next point:

Contact:
If you feel like you are left with more questions than answers after reading one of the posts, please feel free to contact me, I would love to answer any questions you may have about our journey. Also, I would love to get feedback, and more important, I would love to hear your story. I want to share notes, hear what is working for you and what is not. Maybe your child is older and you can tell me where he is at, so I can get a better idea on what to expect. Maybe your child is younger and you have so many questions, but little to no answers. Please know I will be happy to help you any way I can.

Language
Please note that my first language is Spanish, so good chances are that you will find a misspelled word or two in many posts. I'm trying my best to not make mistakes but I still struggle with English, and I hope to get better at it the more posts I write.

Also, you may notice that sometimes I refer to your child as "he". There are two reasons: Hypotonia, Speech delay, and Oculomotor Apraxia are more common in boys than girls. Also, this blog is based on my child's journey, who is a boy.

Purpose:
I started blogging about these medical issues primarily due to the lack of information on Oculomotor Apraxia. I figured there had to be other parents with the same problem, wanting desperately to know more about the subject. So I took on the task of documenting our appointments, advising based on our experiences, informing what I had learned from the doctors, therapist and books, and telling our story.
After I had written a number of posts, I found myself reading more and doing more to help Patrick, but not only to help Patrick, but also to have something to write in my blog. So writing this blog is not only helping parents out there, but helping me help my son.

Disclosure:
One year ago today, I started writing this blog. It's intended to be weekly, but at 36 posts, well, I wrote more like every 10 days. I'm not sure for how long this blog will be live, but I don't expect it to be for years. Even though I love writing, I also want to respect my son's privacy. I don't think he will be too thrilled to have all his medical issues and personal information exposed to his friends -when his friends are able to read and get access to the internet, that is. I think when that time comes, that's when this blog will have to be taken out of the public eye. In the meantime, I hope I can help as many parents as possible to get information about OMA and developmental delays, and hopefully help them be inspired by Patrick's journey.

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