Monday, September 28, 2015

Overcoming Sensory Processing Disorder

Can you overcome sensory processing disorder?

I hope so.

I know it will be a long process, nothing that we will magically overcome in a few weeks or even months, but instead, it will be a journey of years of learning about the way my son's body, brain and emotions operate, and finding the best ways to cope with his sensory processing challenges. He is not quite 5 years old yet, but after a few years of therapies and reading a lot about the subject, we have learned a thing or two, and I would love to share it all with you.

If you want to read about the basics on SPD (what it is, types...), please check out this post I wrote a few months ago on the subject. Also, you may check out this overview on how my son Patrick is specifically affected by SPD (you may find more than a few similarities to your child!)

My son is what in the world of SPD is called a "seeker". This means, his body is constantly looking for physical and vestibular input. He is often licking things (I know, gross!) He loves to chew on his thumbs (not baby sucking, but rather hard-chewing with his molars.) He is often pushing, hugging hard, throwing things, bumping into things. He loves running and can walk for hours. He likes performing physical work (not like I have my toddler/boy working on the yard, but he enjoys helping me vacuuming with a light vacuum and helping me carry the groceries). Enjoys clashing and splashing water like no other kid I know. He sleeps with heavy blankets. He prefers to eat with his hands. He likes to lick things (I know I said that already, but really, it's is that often and drives me that crazy!)

His auditory processing works completely in the opposite way, though. Loud, unexpected noises make him scared and even panicky. He can get a serious panic attack at the bark of a dog or the sound of a fire alarm, not often, but it has happened.

We think we are prepared for the times these will happen again in the future, however, there are times when he will experience certain triggers for the first time that will cause a panic or at the very least a meltdown. Then we will need to learn to manage these new feelings and reactions. When you finally think you have everything under control and your child is doing well for a few months, then there is something new that will remind you that this is something that can't be cured, but can only be controlled, and it will likely take you a good number of years. I'm hopeful that by the time he is a young adult he will know how to cope and respond appropriately to new situations.

But right now he is just a child. And when kids like Patrick get a 'sensory overload' it can get really rough for them, and also for the parents and the people around. In the case of 'seekers', when they get a sensory overload (public places are the most common) they begin to crave more than ever for that physical input. If there is anything around them that they can get their hands on, they will push it, or throw it, or destroy it. They may hit people, and do things that look as if the child is 'misbehaving'. As the caregiver tries to discipline the child and stop the behavior, the sensory overload gets out of control, turning into a complete meltdown for the child (and often, feelings of frustration, helplessness and failure in the parent).

SPD is really serious stuff.

But it can be fun too. At least. you can try to make it fun.

On my next post I will share with you a list of things that we have tried AND have worked. Every child is different and not everything will work for everyone, I know this because we have tried other things that didn't make it to the list simply because they didn't work on my child, even though other parents or experts on the subject raved about them.

My suggestions include things we had to buy, to things we already had but discovered a different use for them. Activities, words, foods and services - all will be explained in the next post. Stay tuned! 

Wednesday, August 19, 2015

Are therapies really important?

Summer is almost over. My husband has been traveling for work for most of the time, so I feel like I haven't been able to do all the summer things I wanted to do with the kids. One of those things was to take them to the $1 movies Regal Cinema offers over the summer. We went only once, granted, it conflicted with Patrick's therapies on Tuesdays, and with mom's group on Wednesdays. Regardless, I felt like I could have made some accommodations to make it work, if only I hadn't been occupied with other things the past couple months. This week was the last week of the Summer movies, so I called to reschedule Patrick's therapy to the afternoon so we could spend the morning at the theater and enjoying a nice lunch afterwards. I introduced the $1 summer movies to a new friend I made recently, who joined us with her daughter, and now they can't wait for next summer to take advantage of the great deal.

After a busy morning, we headed to therapy. We have ran out of the number of therapies allowed by the insurance. We reached the maximum not even half way through the year. We had to reduce Patrick's Occupational and Speech therapies from twice a week to once a week because it would be too much money without the insurance coverage. I got so frustrated, hopeless and helpless days ago after talking to the insurance about the possibility of increasing the limit of therapies allowed. Of course their response was "not possible." My new friend had just asked me this morning if self-pay therapies were expensive, and when I told her how much we were now paying her response made me doubt if it was all worth it. She couldn't believe we were paying that much for only 90 minutes of service a week (1-60 minutes session of OT, 1-30 minutes session of SP).

I began to question it myself. Does he really need the therapies? Can I just get some tips online and from books and teach him myself? What if the improvement I've seen is due only to the fact that he is growing, and not that he is receiving therapies? Will he catch up on his own as he continues to grow?Are we just wasting all these money and our time? Will he regress if we stop the therapies? What should we do? Then we went to therapy, and God found a way to answer my pleas.

Because we rescheduled, Patrick got to see different speech and occupational therapists than the ones he usually sees. It's great to see he doesn't fight going into the sessions anymore, not even with these nice yet unfamiliar young ladies. When it was his turn for OT, the therapist came to take him, and I realized it was the same woman who performed his evaluation 9 months ago. I got back memories of that meeting: He didn't cooperate much. He cried and screamed at some point. He was either hiding behind me or all over the place. He couldn't perform most of the tasks requested. She had to cut the evaluation short because of his lack of cooperation, but she had seen enough. It was obvious that Patrick lagged behind on many areas.

I knew he was better overall now compared to 9 months ago. But I didn't realize how much better until today's session was over and she came to talk to me. Her face could speak for herself. She was in total awe. She said emphatically how much improvement she saw on Patrick. She talked about all the things they did and how surprised she was at the things he could do. He has improved by leaps and bounds... He still got that great aim when throwing things... He is keeping his hands open most of the time... He was able to balance his body very well on the therapy ball... He has gotten so much strength in his muscles... He was very focus in all the activities... He worked so hard..

I had to stop listening and had to think about something else. I distracted myself with the kids around, because I didn't want to cry. It was hard not to. I had that expression when someone is about to cry, I could feel it, and I didn't want to show it. But I know she noticed, and I know it was not the first time she had seen this expression in a parent. After all, we are all there hoping for our kids to get better, and when we hear they do, we rejoice. Therapists must feel good, too, after all, they are the ones helping make these improvements possible.

I was reminded today of how far my son has come, how fast, and how much better he is because of his therapies. There are times when all I see is that gap between him and children his age, that I forget how much far behind he was before, and how much bigger that gap used to be. I had forgotten about the evaluation from 9 months ago, but I'm glad I was coincidentally reminded today about it, when I saw the therapist who performed it. I don't know how much longer will Patrick be receiving therapies. Next year, when our insurance starts covering again his therapies, I don't think we will request to go back to receiving services twice a week. I don't want to overwhelm him. He is just a child, not quite 5 years old yet. But I know we will continue to receive therapies for as long as he needs them and for as long as he enjoys them, and for as long as they continue to help him as they have all this time.

Friday, July 31, 2015

Ocular Motor Apraxia Brochure

Oculomotor Apraxia has a brochure!!


The brochure contains a great overview about the condition, the resources available to us, and it includes great comments/advises from parents and people living with OMA. Whether you choose to get the free PDF version and print it at home, or to order professionally printed copies, I strongly encourage you to get enough copies to share with your pediatrician, therapists, teachers and close friends and family.

Also, please ask your child's neurologist/ophthalmologist to get copies so that his practice can give them out to future OMA patients. We all remember how scary it was the first time we heard OMA at the doctor's office, and the little information that was given to us about it. Now this brochure will help other parents to get some more information at their very first ophthalmologist/neurologist visit, and to feel welcomed into our international OMA community.

To get the brochure, please visit our website at: http://www.ocularmotorapraxia.org/brochure.html

Enjoy!

PS - All the photos on the brochure are from people living with OMA from different parts of the world =)

Friday, July 10, 2015

Busy with extracurricular activities (Part 2)

I talked on my last post about the swimming lessons and other classes that Patrick has been taking "mainstream". But there are 2 additional classes that he is taking over the summer that are designated for children with special needs.

Soccer:


Patrick has been attending soccer classes through a local program called C.A.T.S (Children's Adaptive Team Sports). They had a board bulletin about this at the place where Patrick receives private therapy. I called and they had already had the first class, but I signed him up regardless. I'm from Mexico and grew up playing and being a fan of soccer, so I can't wait to be a soccer mom. Due to Patrick's developmental delays and motor planning issues, I know he couldn't join other children his age on a regular class, so I was thrilled to find out about this special program, so close to my house!


The class is advertised for kids 4-10 years old. I wasn't sure how that would work exactly with such a wide age range, however, the skill level of all the kids is about the same. There are a couple older children with walkers, a couple other with Autism, and a couple other who, like Patrick, you couldn't pinpoint what exactly the health issue is, but you know there is a developmental delay. This class is perfect for him to help him build confidence and learn what is like to be in a sport team.

The instructors on this program are volunteers. Once I read a quote that said "Volunteers don't have extra time, they have extra love to give" and it's so true! We can't go around assuming that volunteers simply have extra time in their hands and this is why they do what they do. They do it because they want to do it, and they find the time to fit it in their busy schedules. I hope other parents elsewhere who are reading this start their own version of C.A.T.S. in their cities if something like this isn't available. It's a great opportunity for children with special needs that otherwise wouldn't have access to experience what it is to belong in a team and train and play regularly.

Music:


A good friend of mine talked to me about a great piano teacher her kids have, and said he mentioned once that he used to do music therapy for autistic children. She introduced us and he was so nice that we decided to give it a try. Patrick is not autistic, but sometimes he presents some behavior that can be considered on the spectrum. His sensory issues, his motor planning issues, his developmental delays - all can be helped with music classes. The instructor suggested to start with sticks and other instruments before getting him to practice piano, as he is still really young.

Patrick enjoys making music with the instruments. It's not easy to get him to follow a pattern but that's the point of taking music lessons. After the first class, the instructor gave me a few exercises to practice at home. I like this type of "homework" because it's so much fun and a great way to spend some quality time with my children. One of the observations the instructor made was to motivate Patrick to make more eye contact or at least make him "aware" of his surroundings. Since then I started to pay more attention to this and realized that indeed when he is playing an instrument he is into it so much he stops paying attention to anything else, and this is the reason why he won't even attempt to follow our patterns/rhythms.

When Patrick was 2, we used to attend a great group class called Music Together Vivo, which is offered in various cities across the United States. It's for children 0-5, and parent participation is encouraged. It was a great way to socialize and dance, sing and play instruments following a pattern. We were considering signing him up again because he really liked those, but when we got the opportunity to get one-on-one music therapy, we decided to give this a try and we are very pleased.


Tuesday, June 30, 2015

Busy with extracurricular activities (Part I)

Cooking!

Patrick struggles in new environments, specially if these are enclosed with a bunch of unknown people. If on top of this, Patrick is expected to perform in a specific way, like following instructions to color or sing, well, forget it, we will have a guaranteed meltdown or at the very least a hyperactive child whose body can't get enough input.

We have discovered that it's not because he doesn't want to be there, but something is triggered in his brain and then in his body that cause such reaction during these situations. He doesn't know how to conduct himself so he gets a little rough. By now I know that it will just take to repeat these "new" situations a couple of times and he will be OK the third time. Instead of preventing my son from this experience, I have learned that exposing him more to this, will help him learn to manage these situations better.

We were thinking about enrolling him at a Summer camp, but he isn't fully potty trained yet (almost there, though!) and also they require that the child separates from parents easily, and as I mentioned above, it's likely that the first couple days would be a nightmare and he would probably be kicked out! So we decided to instead sign him up for a few different classes with parent participation and hopefully next year he can enjoy the summer camp experience.

Patrick took swimming classes at the beginning of Spring. He loves being in the water, and I think swimming is a great way to practice coordination. You can tell it's challenging for him to figure out how to coordinate his arms and legs to make the motion of swimming. But what's the point of taking classes if it isn't to learn? Right? Right! So he will get there, he just needs to practice more.

Swimming class

Due to his low tone in the mouth, Patrick kept his mouth open almost the whole time. The instructor and my husband kept telling him to close it, and he would try it but few seconds later he would go back to opening the mouth. I wrote a note to his school teacher saying P was taking swimming classes, and I made mention of how he kept opening the mouth. She wrote me back saying they made it the topic of the day, and they told the kids to remember to "zip" the mouth when they are in the pool or the tub. Patrick came home showing me how to zzziiiippp. Have I said how much I like his teacher?

When the swimming classes were over I wasn't sure what else to sign him up for from all what was available. So, we signed him up for a "variety zone" class at the near RECenter. It was 10 classes that included a taste of gym, cooking, gardening, arts and crafts, among other things.

First 2 classes were an absolute nightmare, but I knew that could be the case so I stood strong and patient! This time, I was prepared for the crazy behavior, and I just prayed that the instructor, the other kids and the other parents wouldn't be annoyed by him. Aside from one mom who gave me nasty looks at the beginning, all of them were very nice about it. He attended 45-minute classes once a week. Gardening and cooking were his absolute favorite classes and I'm planning to sign him up for just the cooking class this fall, and gardening class next spring. 

Cooking class

For the summer, Patrick will be taking 2 classes geared towards children with special needs, and I will talk more about it on my next post.


Thursday, June 18, 2015

"This is Amazing!"


Patrick was adopting a destroyer mode lately. It was as if every toy or art supply was asking him to destroy it, or throw it, or make an absolute mess with it just for the sake of it. He also likes to make his brother upset all the time -on his defense, it's quite easy (and funny) to upset Robbie, so I feel like he doesn't do it to be mean, but he just simply enjoys it in a fun way. Whatever the reason, I had been raising my voice more than usual and getting upset at him too often that I thought we needed a break, in the form of a mommy/son fun time.

So we went to Six Flags.

I figured if we went during the week, it would be less crowded (toddlers aren't fond of waiting 20 minutes in line for a 1 minute ride) so I had him miss a school day and instead I took him on a date to Six Flags. If you know Patrick, you know he doesn't like heights and hates uneven and narrow paths. He can get panicky if he has to walk on a balance beam by himself, or at the edge of a sidewalk. You can see the scare in his eyes when we have attempted to put him on a bike. Even though he is almost 5, he is still really really careful when walking down the stairs or getting out of the car.

Knowing this, we used to think he would hate amusement parks, but before making that call, we let him try and judge for himself. We have made a commitment to not put limits on him just because of his health condition, so I think he had just learned to walk when we took him to a fair for first time. While he hated the carousel (he used to be scared of animals, specially fake animals) he loved the other rides. My husband and I were really amazed at how much he enjoyed his time at the fair, so we take him to fairs or amusement parks every now and then.


I took him last Fall to Six Flags but we couldn't get into too many things as it was more crowded and he was younger. This time, however, he was tall enough to get on some more intense rides (as intense as they can be for children) and those were his favorite ones! There was hardly anybody at the park so there was no waiting time, and we got to ride 2 or 3 times on his favorite ones. We got on about everything that was aimed for his age (luckily there were many rides) spending about 6 hours on a wonderful date.

This is the first time we go on these rides since his vocabulary improved enough to share his feelings. Like I said, I knew he liked these rides, but it was a whole other story to finally hear from him things like "this is amazing!" and "this feels good, mommy!"  while on the roller coasters.


I loved every second of it, even the time when we got stuck on a ride and I imagined ourselves on the local news while being rescued (it was fixed few minutes later without news or rescue team involved!) The great panoramic view from above allowed Patrick to see all the rides near to us, so instead of panicking, he began to point at the rides he wanted to ride next. "I want to ride that one!" "I want that one, too!" "Look, mommy! That one! Thaaaat one!" As he was doing this, I couldn't imagine a better person to be stuck on the ride with.


I loved every second of it, even the time when he cried and cried because he wasn't allowed to go on the crazy big rides for adults. I was happy to see him so upset about it because I'm an adrenaline junkie, or at least I used to be when I was younger, and his father is not and never was. So seeing him so upset about not being able to get on those rides made me feel like he got that from me, that he is like me, and that we can have so much fun at these rides when he grows and is allowed to go on them. I look forward to it already!

It was lovely, refreshing, fun, peaceful, blissful, and all the positive feelings you can think of. Towards the end we played one of those games where you shoot a target with water, and we won 2 superhero capes. He was so excited to win and to wear his cape. As we were leaving, he looked at me and said "mommy, I want to run". I agreed, and he ran and ran so happy with his superhero cape pretending to be a superhero. As I was trying to catch up to his fast running, he came back to me and began to run around me. I told him he was my hero, then he stopped to ask me to put my cape on. I take that as his way of telling me that I'm his hero as well =)



Indeed it was amazing. Indeed it felt good, son

You made it so.

Wednesday, June 10, 2015

The process of learning -Robbie vs Patrick

I hope the title doesn't sound like I'm making this as some sort of match or race between Robbie and Patrick. What I mean with the "vs", is the difference, as in how one learns versus the other one.

It's very different.

Ever since Patrick was a baby, I could tell that he was very passive compared to other kids. Patrick would happily spend long periods of time sitting on my lap without any desire of going anywhere else. Sometimes I would sit him on my bed, with a few toys around him, while I was getting dressed or cleaning the bedroom, and he wouldn't move from there. I remember when I went to Mexico to visit my family (Patrick was 1 year old) I was feeding him a snack, and he was sitting on a table. I left him there for few seconds to grab a napkin and when my mom saw us she got upset, because she thought Patrick could fall off and get hurt. But I knew Patrick wasn't going anywhere. He just wouldn't make any effort to go anywhere.

We had to teach Patrick how to roll, how to stand up, how to reach for objects, how to crawl, how to walk. Any other parents would say, well, I taught those things to my healthy kid, too, but the thing is, we had to push him, a lot, really a lot, well beyond the milestone mark, until he finally did each of them. We taught him how to eat, how to drink from a straw or sippy cup, and how to everything I can think of.

Robbie on the other hand, couldn't be left alone more than one second on a couch or bed, let alone on a table. At 6 months of age, he moved, and moved fast. As a baby, he didn't like to spend more than a couple minutes on my lap, and while he was on my lap, he was usually looking for something to grab, or simply just trying to climb to the top of my head. Robbie started to roll over just shy of 4 months of age, he was crawling at 6 1/2 months and walking by the time he was 11 months. I remember the day when I went to pick him up from his crib and there he was, standing up! He is talking up the storm now, and is even saying long sentences that Patrick, being 2 years older, can't still put together.

But what is most interesting about this, is not the fact that Robbie learned these things quick, but the fact that I didn't have to teach Robbie any of this. It's amazing how these things are so natural for human beings, at least, for most of us. Robbie had the curiosity to reach for things, and he figured out how to reach them, without waiting for someone to teach him that he could do it. It's in his nature.

I knew Patrick was more "calm" than our friends' kids, but it was only until I had a healthy baby 24/7 that I realized the huge difference in the process of learning between Patrick and most healthy kids.
This used to make me worry, because I know I'm not always going to be around to teach Patrick how to do things. As he grows, he is getting better at coming up with solutions and ideas on his own, however this process is going slow.

On the bright side, he is now more able to do certain things because of his interest to imitate. When someone is doing something totally new (and exciting) to him, he will just observe, carefully, and then he will imitate or at least try. This is how he learned to open gates, doors, pretend to use tools like daddy and pretend to clean like mommy.

Patrick has this eager for doing things that are meaningful and helpful to others. He is particularly interested in performing chores and activities that the adults around him perform - I know my husband can't wait until the boys get a little older and can begin some real yard work! However, while Patrick is a great helper, Robbie has absolutely no desire in helping us with basic things around the house, even though he has the ability to do it. Funny how things work!

I hope Patrick is able to find people that are willing to be patient with him along the way. I hope he meets friends and teachers that will be able to see that even though he struggles at coordinating his smart brain with his uncoordinated body, he is a nice guy who is always happy to help you in any way he can.

Saturday, May 9, 2015

Those moms who are not my child's mom.

This year, I would like to salute all the women who take special attention and care of my son, and all the other children with special needs. The therapists, the special education teachers, the counselors, the doctors, and the social workers that have contributed to the happiness of my son and my family.

They are mothers, too.

But not the mothers of my son.

As much as I enjoy being a stay at home mom and encourage other mothers of young children to do the same if they are financially able to do it, I have to say, I'm very much thankful for the ones that choose to balance work and family. There are jobs that are just naturally meant for women, and most of those jobs involve interactions with children, because we are more tender, softer, caring, loving... motherly.

I love Patrick's preschool teacher. She is such a great advocate for my son. I know she truly cares because she gets so excited at every one of his milestones; she is concerned when things aren't going so well, and she has been a great supporter that knows how to handle my sensibility and worry when we are in the middle of an IEP meeting.

One day we were having a conversation about trivial things, and she mentioned something her son did. There, I was reminded that she is a mother, too. That she has some of her own, yet she spends her mornings with my son and other little ones with special needs, helping them every step of the way. I'm so thankful she chose to balance work and family.

Patrick's private therapists at the therapy center are very young. I assumed they were either single or had recently married without children yet. One day, I noticed one of his speech therapists was pregnant. A few months later she said she was going to take 6 months off to be with her baby, but she would return to work part-time afterwards.

Another therapist had to move back to her hometown, as she and her husband were getting ready to start a family, and they figured that being close to her parents and siblings would make things easier for her to balance work and family. Her replacement, was a young woman who had been on "maternity leave" for the past year.

These three therapists are so bright, smart, fun and incredibly loving; they have contributed tremendously to Patrick's improvement, and I'm so thankful they all are choosing to continue bringing their expertise and caring personality to all the children like my son, who need just exactly that.

Often you hear this battle of stay-at-home mothers vs working mothers. Blog posts and articles supporting one and trashing the other one. I love being home with my little ones and I hope to continue doing this for a few more years. But I'm glad for all those moms who decide to help other moms like me, by rendering an exceptional service to our children and our families, even when that means they have to sacrifice a little time with their very own children.

Please don't even think we take any of your time for granted. You have impacted the lives of hundreds of special children, who today are able to say a word because of you, to take a step because of you, to socialize because of you, to manage tantrums because of you, to keep trying because of you.

Thank you for this and all you do.

Happy mothers day.

Monday, March 30, 2015

Things I have learned from raising a son with OMA


Things I have learned from raising my son with Ocular Motor Apraxia:



  1. I need to believe more in God and my son, than in his brain scan and what we have been told about it.

  2. His struggles and challenges affect me (emotionally) more than they affect him. He is actually quite oblivious about them.

  3. He shouldn't be protected in a bubble. If I want him to have a life similar to his brother's, then he should be allowed to experience and live like his brother.

  4. When he is faced with a challenge, I must remember the many things he has overcome in the past. He has succeeded before and this time won't be any different.

  5. I pay too much attention to the bad times, when in reality there is only one melt-down for every 20 giggles.

  6. There are many people willing to help you. They may be family, they may be friends, they may be neither yet become both.

  7. There are many people in need of help. I can be that help, and so is my son.

  8. If he is ever looked down on, we will remember to look up (to God). He won't know low self-esteem as long as his heart knows he is His child, made to His image.

  9. It's nice if a child knows the letters and numbers, but it's best if he knows that he is loved and cared for. He also must know that doing good things is better than doing things well.

  10. Our tiny obstacles pale in comparison to what other people get to experience. If they are able to stay positive and hopeful, we must do so as well.

  11. Some of the things he can't do, and some behaviors he may show, aren't triggered by his health condition, but rather because he is just a toddler, or a boy, or a human being.

  12. Praying really helps. It gives me peace, it gives me hope, and it has brought me miracles.

  13. There is a life purpose in each individual. My son's health condition doesn't stop him from having a life purpose, in fact, his may be extra special and I can't wait for him to grow and discover it.

  14. Seeing how hard he worked to accomplish the things that for most come naturally, has made me appreciate the wonder in simple things that otherwise would have gone unnoticed.

  15. I love him, not more, not less, not any different from his brother. Love sees beyond our eyes, and this is why he will always be capable of being loved by others.

  16. His body (including his brain) may be affected by his health condition, but his mind and soul aren't. These are the ones that truly matter anyway.

  17. Things do get better through the months and years. We are better because of all we have lived and learned. We are better because of everything I just said, and the things I can't even find the words for.

Saturday, February 28, 2015

Ocular Motor (Oculomotor) Apraxia Website



"...We still imagine, daydream, and visualize our desires and many of those imaginings become real..."

That's a quote from my mother-in-law, who wrote it couple days ago on the last Ezine of the Napoleon Hill Foundation. It's rather fitting that she is writing about belief, applied faith and visualization, just as I'm ready to see the product of my very own applied faith and vision. A project that I hinted about couple months ago. A project that is so dear to me mostly because of whom I'm doing it for.

When we began our journey of having a child with OMA, we realized that whenever we had a question, we would hit a wall. There was barely any information about OMA on the internet, let alone any books or other resources about it. Doctors? Not much help either. In their defense, OMA is a fairly new discovered rare condition, and not much research or clinical studies have been performed to document the few adults living with OMA today.

We live in United States and my son is a patient at one of the best hospitals in the country. If I couldn't find or access information about OMA, I knew other parents had to be in the same situation, with the same questions I had, with the same worries I had. This is why I began blogging couple years ago, sharing everything I knew about OMA, from the little I could gather from doctors, to the many experiences we were living by raising our son Patrick.

I have talked before about a closed Facebook group with more than 400 members from all over the world, who are either parents of children with OMA, or adults living with OMA. This is such a great resource that it's unfortunate that there are many people out there that don't have a Facebook account and so they will never be able to join it. There are others that have Facebook accounts, but our searches never led us to this closed group, which is what happened to me for couple years, and which is probably what happens to the people that never come across this blog.

What is more unfortunate of it all, is that there are not medical professionals, on this blog, or the Facebook group, or anywhere else, reading our questions, hearing our concerns or giving us advice. There are no experts anywhere that can see that we are families wondering what to expect and what we should be doing to best help our children or ourselves with OMA. There are no institutions, policy makers or researches, that can see that there are hundreds of families in great need of more studies being done in regards to OMA, and that we are willing and ready to help them out, because we know that by doing so we are helping ourselves. Nobody can see us, or hear us, or read us aside from ourselves.

This is why I have been working tirelessly the past couple of months to create a public website. These months can perfectly be described by this quote my mother sent to me recently:

"Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; the one who seeks finds; and to the one who knocks, the door will be opened" Matthew 7:7-8

I have been asking a lot for the past two months.

I have been reaching out to doctors, researchers and Institutes asking them for help to share with me any findings on OMA so that I could put it up on the website. I have been asking for individuals with OMA or parenting a child with OMA, who were willing to join my adventure and make this website real. I have been asking my husband to cook every day this past two weeks and watch our children more than the usual so I could focus on the website. I have been asking friends and family to buy jewelry from a dear friend, who kindly offered to donate a percentage of those sales to help me pay for website expenses and any other related projects. I have been asking God for his blessing and guidance every step of the way.

I asked and I received.

We needed to have a place, where to put all the important information about OMA, so that people would get the answers to the very basic questions that come to our minds when we first hear about this rare condition. We have that place today.

We needed a space, that served as an international network for all the people affected by OMA around the world to be able to connect with each other. From parent bloggers, to the great Facebook group, to adults living with OMA waiting for people to ask them questions. We have that space today.

We needed a page, where people could find gathered all the studies and reports done about OMA, that until now have been scattered all over the web. We have that page today.

We needed a source, where people could find tips that would help us know how to better raise our children with OMA. A place where adults with OMA would give us suggestions about practicing sports, going to college, getting a job, and even driving a car with such rare eye condition. We have this source today.

We needed a database, where people could find doctors who were familiar with OMA. Many people in many countries struggle finding a doctor who can give them a proper diagnosis, or answer basic question about this condition. We have that database today.

We needed a platform, where we could list all the medical community that are helping us with our cause, not only to thank them for their help but also to motivate other institutions, researchers, government, non profit and private organizations to join our cause. We have that platform today.

We needed a project, where the individuals who were eager to do something about OMA, were able to invest their time, passion and skills to actually do it. We needed to have their faces and their stories listed, so that other people that were ever interested in doing something about OMA, got inspired to take action as well. We have that project today.

We needed that and much more. And this is why OcularMotorApraxia.org exists today.

There is still a lot more work to do, not only to include all the information still missing on the website, but to tackle other projects that I'm sure will be born because of this platform we have created. It's great to see what we can accomplish, when we combine the people, and the efforts, and the time, and the skills, and the knowledge, and the mental attitude, and the faith. It's great to see what we can accomplish, when we have a major purpose driven by emotions and motives so strong and so meaningful to us. I did it because of my son, for my son, and for all the children, the parents and the adults with OMA who share the same journey my family does. I know those who have joined me have done it for the exact same reasons, too.

"...We still imagine, daydream, and visualize our desires and many of those imaginings become real..."

Indeed they do.

What do you imagine? What do you daydream? What do you visualize?

Which of these desires are you making real?

Wednesday, February 18, 2015

Overcoming Behavioral Issues: Talking to your children about their challenges.

A few weeks ago Patrick had a play date at the house. At some point, Patrick saw pretzels on the counter and he asked for it: Paqui wants Patses (meaning Patrick wants Pretzels -occasionally he still refers to himself in third person). One of his friends asked me what was Patrick saying, and when I told him, he said "Why did he say it like that? Why is he saying patses?" Patrick just looked at him and stopped talking, I could tell he became aware he wasn't speaking right and got shy. This caught me off guard, so I just said something like "Because everyone says things different... I think that's a fun way to say it" and I moved on, giving everyone pretzels.

Later that day, my husband got home from work and we went out to eat. On the way there, I talked to my husband about the incident, and we talked about a few other issues relating to Patrick's therapies. I honestly believed the kids were not paying attention to what we were talking. Once we got to the restaurant and my husband tried to get Patrick out of his carseat, Patrick turned his head away from his dad and avoided looking at him from then on. My husband immediately knew that Patrick had heard the conversation and he was feeling either embarrassed or upset, or both.

That weekend we went to see a theater play for children, but Patrick was very sensitive. He cried a lot and asked to leave when he saw all the people. We were able to convince him to stay and eventually he enjoyed the show, but he had to sit on my lap the whole time. On Monday he had Ocupational and Speech Therapy. We were told that the gym they usually work on was being used, so they had to go to a different one. Big mistake.

He threw a fit. He had an absolute meltdown and cried for so long. It was hard for the two therapists and myself to calm him down. We had to do a lot of negotiating with him to eventually get him to cooperate and play at the session. I had to stay with them the whole time. He began to enjoy the therapy the last 10 minutes or so, but then it was time to leave. Another big mistake. He began to scream and throw things and cry. He didn't want to leave, but he didn't want to be there either. He began to run around the hallways crying out loud. The therapist and myself were trying to reach him to calm him down but it was impossible. He found an empty gym and so he ran across that room, to the opposite corner, where he found a place to hide and once in there, he threw himself on the floor and just cried. He cried and cried and cried. I had never seen him like that. He wasn't throwing a fit, this was different. I could see my son hurting, I could see my son suffering and crying his heart out.

I let him cry for a little awhile. I knew he needed to get it out, whatever it was that was making him sad, and given that his speech is limited, and hitting people or things isn't really his thing, I figured tears would do it for him. He then was able to come with me and leave that place. I couldn't wait to leave the place. He left for school OK and he was calmed the rest of the day, but he was a little sad, too.

On Tuesday we had therapy again. The therapist made sure the usual gym was available this time, so he was able to go in by himself. At the end when the therapist came to talk to me about what they worked on during the session, Patrick got upset and started to push his brother and grabbed a trash can and threw everything out. He was running and pushing things, just trying to grab my attention I guess. He was very upset that I was talking to his therapist. We had been doing this for 4 months now, and never had a problem like this.

Couple days later we went to try out one of the MyGym classes for toddlers. Patrick was a nightmare there. At first he didn't want to participate on anything. Once he was comfortable enough, he began to push things, he wasn't listening to me much, he was playing rough, and when it was time to leave, he had another meltdown. He cried for a long time. I'm a short person, and Patrick is a 4 year old boy who is actually on the tall side, so controlling his crazy movements isn't precisely easy. It's winter time so there I'm trying to put his shoes on, jacket on, gloves, hats, and do the same with his brother but it's impossible. I'm completely on the floor trying to control my child. Parents come and go and I can tell everyone is giving us the look. It's Thursday and it's been like this all week. Complete meltdowns Every.Single.Day. At this point I'm emotionally exhausted.

What's happening to my son?

We talked to his teacher and the therapists about this new behavior. By "mistake" we attended a support group for parents of children with Sensory Processing Issues (I will talk about this on my next post) so we talk to those parents about this, too. My husband and I talk about all of this over and over trying to figure out what to do. Also, we recently began to watch the TV Show Parenthood -and coincidentally we watched the episode where the parents realize is time to talk to their child about his Asperger Syndrome and asked the psychologist for help. Everything above got us to the conclusion that it was time to talk to Patrick about his challenges.

It became obvious that he is now self aware that there are a few things that he can't do like everyone else. It's obvious that his behavior is telling us that it's bothering him, so we need to talk to him about it. But it's also obvious that he is just a 4 year old and we don't want to burden him with information he may not only not be able to process, but also that may make him too self-conscious and with low self-stem. We are told we need to talk to him, but it has to be very informal, very short, very basic, and in a very loving way. I mustn't cry when we talk so perhaps is best his dad says something. And he does.

While I'm serving dinner, I overheard his dad asking him why he thinks he goes to "fun class" (therapies), Patrick doesn't answer. My husband tells him "We all have things that we are good at, and things we need to practice more. You need to practice your speech a little, but you will be fine in no time because Ms. Morgan and Ms. Kristin will help you with that. Maybe Robbie some day will need to go to fun class, too. There are things you can do better than Robbie, and things Robbie can do better than you, and that's OK, we all are constantly learning. We are so proud of how hard you work and we love you very much."

Patrick only said OK. He acted like he didn't care much about that talk, but he did. I know it, because the meltdowns disappeared after that. We understand now that he has difficulty controlling his emotions, or knowing how to react and what to do with his feelings. I know, too, that he will have more episodes like this one as he grows and new feelings arise. But my mental attitude will be different. I won't let negative thoughts get the best of me. I'm my son's biggest support, and if I'm not 100%, how can he be 100%? I won't worry about what is about to come. For now, he knows we got his back and we love him, and he knows we believe he is perfect just the way he is. He knew all this before, too, but sometimes he will need to be reminded, and that's OK, because we are his parents, and this is what we do.

Saturday, January 31, 2015

Overcoming Behavioral Issues: Sensory Processing Disorder (How is Patrick affected?)


As I mentioned on my last post, Patrick was evaluated by an Occupational Therapist, who tested not only his fine and gross motor skills, but also his Sensory Processing Skills. Patrick's evaluation displayed scores in "Some Problems" range with Touch and Body Awareness; "Typical" performance range with Social Participation; and "Definite Dysfunction" with Vision, Hearing, Balance and Planning and Ideas.

Vision and Hearing.
I will start by addressing these areas, particularly "hearing", because it was the first problem we discovered. Since Patrick was only a few months of age, we noticed he was extremely sensitive to loud and unexpected noises. We know some babies are afraid of the vacuum cleaner, for example, but Patrick used to cry totally freak out to noises like the faucet on the bathtub, a blender, doorbell, music or TV that are unexpectedly turned on, animal sounds, and even stuffed animals noises, among many other things. As Patrick grew older, his tolerance to some of these noises got better, however, his over-responsiveness to certain unexpected loud sounds continued and began to concern us.

He was also very afraid of small, fast-moving objects and animals. We thought maybe it was because of his eye disorder. Patrick's eye condition (Ocular Motor Apraxia) make him have difficulty tracking objects moving horizontally. Imagine one year old Patrick seating on the floor, then suddenly a dog comes barking and moving around. Patrick not only can't run away (or even crawl -due to low muscle tone), his eyes also have difficulty tracking the dog's movements. So what does Patrick do? He gets afraid of being attacked without being able to defend himself, so he starts having a panic attack. Perhaps baby Patrick believed stuffed animals could voluntarily move, and that's why he used to be afraid of them, too. This is how my husband and I made sense of the situation, but we didn't know how to help him avoid getting panicked.

When he was almost 3 years old, we talked to his OT about all of this and she was a life saver. We used to grab the doggy (or whatever was making him afraid) and be like "look, it's fine, it won't do anything to you, look, I'm petting it, you can pet it too! Which she told us was an absolute mistake. The thing is, Patrick is in panic mode, his mind is so far away that he won't reason to "it won't harm you". So the OT said we should not force the child to confront his fear right on the spot. Instead we needed to respect his fear, and say "bye talking bear, byeee" and put it away. Eventually he associated the "bye" with taking the scary things away, and so he began to say "bye" on his own to things he didn't want. All we had to do was to listen to his "bye" which in other words meant "take that scary thing away from me" and so we did just that.

It made a whole world of difference. He could be in control of the situation, and he knew we would respect his wishes. If we went to the Zoo, he would be so excited walking towards the animals, but at a certain point he would say "bye elephant" and we just knew we were getting too close to them, so we would stop right there. Any step closer could mean total Panic. We knew it, and he knew it. So we would just admire them from the distance and move onto other animals. As he grows he gets more familiar with them and the distances get reduced. He is just very cautious all the time, but warms up to anything eventually.

Touch and Body Awareness
It took a long time for Patrick to stop mouthing toys and other objects. He was waaay passed that stage, but he continued doing it. Eventually he replaced the objects with his thumbs, and so now he likes to put each thumb all the way back to each set of molars and chews on them while he is watching TV or trying to fall asleep. He is often sticking out his tongue or pushing his lower teeth with it. We know now that it's all about seeking that sensory input in his mouth. We use chewy tubs and seem to help.

He puts a lot of pressure when drawing, and often times doesn't realize the strength in which he pushes, opens, pulls or moves things. He grasps objects so tightly it is difficult to use the object. His hands are always making a fist, not because he is ready to hit someone, but it's just the way he moves around.

His body in general is sensory seeker. He loves standing under the shower just to feel the water in his body. He doesn't sleep unless he has a somewhat heavy blanket on him. Ball pits are his f-a-v-o-r-i-t-e thing in the world. He loves throwing things (and he has amazing aim) so we have plenty of soft balls that he can throw around the house and a jump-o-lene where he can just throw himself and get the deep pressure he wants. Robbie is a tough little guy and his dad of course loves playing rough with them so thankfully Patrick gets ways of satisfying these sensory needs. He loves to be hugged tight, too, and this is definitely my favorite part. =)

Balance and Motion
The vestibular system (located in the inner ear) is in charge of several things such as postural control, perception of body movements in space, gravity, attention, bilateral coordination, ability to cope with stress and auditory-language among other things. His balance and coordination aren't perfect. Heights, uneven surfaces, narrow paths, stairs... all these make him move with extreme caution. He bumps onto things and people often. Patrick can't ride a kiddie bike, and I can already tell it's going to take years before he is able to master that skill. He is much more sensitive and adverse to vestibular input than other kids. This sensitivity contributes to avoidance and hesitation with daily activities that involve vestibular input.

Sometimes it feels like Patrick isn't 100% aware of where his body parts are. If I tell Patrick to touch his cheek, he has no problem doing it. But if I touch my cheek, and ask him to imitate me just by watching me, he may touch the lip, or the forehead, and may take him a couple tries before he touches successfully the cheek. And if I were to cross my left hand all the way to right cheek... well, forget it, he is just going to raise one hand, then the other one, and touch his hair, then try with the other hand, then start all over...

Planning and Ideas
The difficulty in performing the tasks mentioned above are affected also by his struggles with planning and improvising. Patrick often fails to complete tasks with multiple steps and has trouble coming up with new ideas during play or other activities.  Motor planning plays a huge role in the way he approaches things and places. I know he struggles with this. He is not able to put on shoes or dress himself or to even take off his jeans without some sort of help. At first I thought it was just related to his low tone which caused fine and gross motor delays, but now I know it's mostly due to his difficulty planning.

Just to put an example, for awhile I had the Pack 'n Play filled with small plastic balls, so the kids could use it as a ball pit. One day, Robbie (15-18 months old) placed a stool next to the Pack 'n Play, he climbed on to it, and then he climbed into the Pack 'n Play. I was amazed that he had already figured out a way to get in without help, while Patrick (3 1/2 years old) hadn't all that time. On top of this, when Patrick tried to imitate Robbie, he got stuck climbing into the Pack 'n Play. I saw how difficult it was for him to decide which leg had to move first and how, and then what arm goes next... For Robbie there was no thinking, once he was on the stool, it took him a second to jump in. But with Patrick, the movements aren't spontaneous. He has to think it through, and then he struggles coming up with the plan and coordinating his own body to accomplish said plan.

Social Participation
I addressed Patrick's social skills on this post. There isn't much to add other than he recently had few episodes of being very uncomfortable in closed spaces with a lot of people. He also seems to be bothered by routine changes, sometimes with things so simple like placing my purse on the couch instead of the table where I usually put it, or his dad sitting on the right side of the sectional sofa instead of the left side, where he usually sits when we watch a movie. Not sure if these are social participation-related, but one thing I know is that two weeks ago he was having a really rough time being "out there" because of situations like these. He was having meltdowns almost every day and it was difficult on me to see him going through it. I know I was supposed to talk about it on this post, but this is already long enough that I will have to leave it for next week.

Enjoy your weekend!

Thursday, January 22, 2015

Overcoming Behavioral Issues: Sensory Processing Disorder

Last year I blogged a series of posts related to Patrick's behavior. I called these series "Overcoming Behavioral Issues" and I identified 4 main reasons that were triggering Patrick's bad behavior:


  1. Speech delay
  2. Nutrition
  3. Sensory issues
  4. Medical condition

I wrote separate posts to explain with more detail his communication and nutritional issues, but I really never got the chance to talk at length about how his medical condition was affecting his behavior.

This week is the perfect time to resume the series, Why is that? Because this past Monday we had a really, really, really bad day. But before I tell you what happened on Monday, I think is important to explain what is Sensory Processing Disorder, or Sensory Integration Dysfunction.

I found the best explanation (everything in blue) on the SPD Foundation's website:

Sensory processing refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Whether you are biting into a hamburger, riding a bicycle, or reading a book, your successful completion of the activity requires processing sensation or "sensory integration." 
So basically, we are wired to respond to everything we feel and perceive through our senses. What we hear, what we eat, what we touch, what we see, and what we smell - everything is processed in our brain and then in turn this emits a response, like if we hear something too loud, we may cover our ears, or if something is too spicy, we may spit it out and get some water! 

Sensory Processing Disorder  exists when sensory signals don't get organized into appropriate responses. It's a neurological "traffic jam" that prevents certain parts of the brain from receiving the information needed to interpret sensory information correctly. Motor clumsiness, behavioral problems, anxiety, depression, school failure, and other impacts may result if the disorder is not treated effectively. 
Imagine a classroom with 10 children, and suddenly the fire alarm goes off. Five kids get surprised and maybe a little scared, they immediately look at the teacher waiting for her reaction to explain what's happening and what to do next. Two other kids are too busy playing to get too concerned, they do notice the noise, but they just wait to see if it goes away. Two younger kids get scared and cry, but as soon as the teacher explains that it was a false alarm and everything is OK, they calm down. And then there is one kid, he panics, he hides, he cries and screams and shakes... it's hard to calm him down, it's hard to get him to listen and it takes a lot longer and much more effort to get him to stop screaming. This last child shows an overreaction to a loud noise, this reaction is an indication that the "cause" is provoking an "effect" that isn't within the norm, hence, it shows that there is a disorder in the way he process this sensation. 

Symptoms of Sensory Processing Disorder, like those of most disorders, occur within a broad spectrum of severity. While most of us have occasional difficulties processing sensory information, for children and adults with SPD, these difficulties are chronic, and they disrupt everyday life. 
My husband tolerates spicy food more than I do (and I'm the Mexican one, you would think I could eat a jalapeno and no complain!) but does my sensitiveness to spicy food mean that I have a sensory issue? No, it doesn't. The key to identifying the difference in "every person perceives things different" from an actual sensory disorder, is when that "different perception" affects your life. When it's affecting significantly the way you socialize, the way you learn and the way you are, that's when you know it stops being a normal thing and it becomes a more serious issue that needs to be addressed. 

Sensory Processing Disorder can affect people in only one sense–for example, just touch or just sight or just movement–or in multiple senses. One person with SPD may over-respond to sensation and find clothing, physical contact, light, sound, food, or other sensory input to be unbearable. Another might under-respond and show little or no reaction to stimulation, even pain or extreme hot and cold. In children whose sensory processing of messages from the muscles and joints is impaired, posture and motor skills can be affected. 
The child in that classroom who panicked at the fire alarm, may only have an issue with loud noises, while the sensations coming from his nose, mouth, touch and eyes are perfectly OK. While this child overreacted to the situation, there are also children with SPD who may show no emotion, no reaction whatsoever to a sensation that otherwise would cause reaction in most people.

Still other children exhibit an appetite for sensation that is in perpetual overdrive. These kids often are misdiagnosed - and inappropriately medicated - for ADHD. 
A child who is often pushing other kids, throwing things and actively searching for physical input, might be thought to have ADHD, when all he needed was to get his need for physical stimulation taken care of. These kids benefit from taking a break from the classroom activities to enjoy a few minutes of physical activity, and after receiving the input they needed, they get back to their classrooms and work perfectly fine along their peers.  

Often I feel like SPD is the new ADHD or the new Autism, in the sense that SPD sometimes is treated like a trend: More and more often kids are (mis)diagnosed with it. A child that's too shy has Autism; a child that is too active, has ADHD; and today, a child that may fall in either or has SPD. Do all the kids diagnosed with SPD really have a legitimate medical problem in the way they process their sensations, or are we not letting kids be kids anymore?  We need to be careful when applying any of these terms to our precious little ones, because there are kids who really have SPD, ADHD and Autism, and are looked down by other people who are so tired of all these disorders on the rise. On the other hand, there are many children that don't have these conditions yet are diagnosed and treated as if they did, causing real problems in the child. 

For the parents that believe their children may be affected by SPD, you can read this article that talks more about the trend vs the real issue. I encourage you to get your child evaluated by a professional Occupational Therapist who will be able to tell you if your child has SPD or something else, if anything. We have known about Patrick's sensory issues for a couple of years, even though he was officially diagnosed until recently. Coming to terms with "he actually has it" vs "he is just a child going through a phase" was somewhat easier for us because we have seen a scan of his brain. His MRI actually showed a somewhat messy and underdeveloped cerebellar vermis - the part to be believed to control the way we react to things. Luckily for him and for us, it isn't affecting all his senses, but for the senses that are affected, well, let's just say I had a real taste of it last Monday, and it wasn't good.  We had been managing his SPD just fine -learning what to do and what not to do... but last Monday was rough. It's just so hard to see your child suffering and not being able to help.

Stay tuned for the next post, this is To Be Continued...

Friday, January 16, 2015

Whatever the mind can conceive and believe, the mind can achieve


I have written a number of posts where I've talked about all the challenges that we face dealing with our son's significant developmental delays. Keeping a positive mental attitude has been the greatest aid in keeping us going and keeping us hopeful of a brighter tomorrow.

I have been somewhat involved with the Napoleon Hill Foundation for a few years now, but it wasn't until I wrote my last post on October, that I realized that many of Napoleon Hill's keys to success are being constantly implemented on my family's life. As I wrote about the difficulties my son had matching the skills of his peers -and how I used to get sad and feel self-pity thinking I had in front of me a situation I could not control; and how, I slowly began to overcome my doubts and started to believe more in my son, in God, and all the resources we had available to us- I realized how much Napoleon Hill's philosophy was helping me help my son.

Coincidentally, for this 2015, the Napoleon Hill Foundation is writing on their weekly Ezine children stories (literature) that relate to Napoleon Hill's keys to Success. This was to me, another "sign" that the philosophy can very well be applied to children, to children like mine. I wanted more of that food. I wanted to learn more about the philosophy, and I wanted to become a lot more disciplined, too. You see, I have so many ideas to help out my son and many other parents around world, but I have struggled putting my ideas to work. Procrastination and not having a set schedule to organize my everyday life was getting the best of me, so looking for help I decided to start a Distance Learning Course with the Napoleon Hill Foundation.

The first week, we had to decide on our Major Definite Purpose. I knew what it was, but the necessary steps to accomplish it were vague. I never put too much thought into it, let alone write about it. But this time, the course required that I explained it, and by writing down my purpose and my plan to accomplish it, it became more clear. Realizing all the work and time required to accomplish my goal, it became clear to me that if I were to continue the way I had, I wouldn't get too far, or it would take me longer.

Like I said, I'm not as productive when I don't have schedules/deadlines, so I had to start there. Who says stay-at-home moms don't need schedules? And by that, I don't mean just writing down the Pediatrician appointments, school meetings, soccer practice... I mean, having a set schedule, from the moment I wake up, to the moment I go to bed. From the weekly time I have to set out to work on my blog, to read, to spend just in myself, to the time I need to spend sitting down (or running around) with my children and forget about everything else. From the time I need to spend doing house chores, groceries and cook, to the doctor and therapists appointments, and to the time I have to invest to accomplish my Major Definite Purpose. Of course there is time for improvisation, too -that free time where nothing is scheduled and I can just be spontaneous and do what I want... or what is needed.

Kids like Patrick, as it also happens with kids who have Autism, benefit significantly from schedules. As a matter of fact, not having a schedule on their lives makes them uneasy and uncooperative. I have known this for awhile but I don't know why on earth it took me this long to do something about it. But we are on tract now. I'm wearing the Positive Mental Attitude hat, and this time I'm actually working towards my goal, too. You will hear from me more often, and you will see good things are coming for the Ocular Motor Apraxia community. If you want to get involved, just send me an email, because I will need help! I'm committed. My son is my motive, and I'm going to make it happen, because like Napoleon Hill said: Whatever the mind can conceive and believe, the mind can achieve.

Cheers to a better, brighter and healthier 2015!